Thursday, December 30, 2010

This past week we took kensley up for her her first round of the chemotherapy treatment that takes a week to do. The chemotherapy she gets is irinotecan that is the one that is part of her trial run. We also had to take her to huntsman's for her simulation with the radiation. They gave her the tatoos that line the machine up with her when she gets her treatments. Primary's wanted to admit her for the week to run the chemo treatments and she how she would handle it. She did really well with it so we were able to bring her home last night and finish her treatment here in cedar at the clinic. The six hour drive home in the weather was terrible but I would say it was worth it once we got here. We are grateful that she is handling this so well and able to do some of these treatments here in town. Next week the radiation starts and we will get to be home on the weekends so we will keep everyone updated through the process. Thanks to everyone for their prayers and concerns for our little sweetheart. Love the Kings

Tuesday, December 21, 2010

snugglin with grandpa


Trying to wake up after her surgery






I was so excited to come in Kensleys room to find her playing with her horses its been so long





kens and korbin






she loves to sit in her baby dolls crib







Well they did kensley's surgery today to move her ovaries and it went really well. We came up yesterday in another snow storm and we really need to start timing those better because that's two for two now and it is definately getting old and we are just getting started. grandpa dave was here last night when we got up here so him and kens got to hang out at the motel for a few hours while jen and i went and finished up our christmas shopping. We brought her up to primary's first thing this morning and did a ct scan on her so the surgeon could see how the mass looked and where the ovaries were sitting. The mass has already gone down a little bit so that was really good to hear. After the scan we had to run her up the road to huntsman's where they did a quick ultrasound so they can be planning for her radiation. We were really hoping to take her cathedar out by the first of the year but our radiation doctor wants to leave it in for those six weeks of treatments to help him keep her drained out completely and also toward the end of the treatment he will use it to fill her bladder up so that they will have a better target of it as it shrinks away. They are saying that by doing this it will limit some exposure to certain areas they are trying to protect, so we can deal with the cathedar for a while longer if it will help her. We brought her back down to primary's and waited around until her operation.They were planning on about two hours to do it and it only took him around an hour to do it so things have gone really good today. We are keeping her up here for the night to watch her and planning on coming home before noon tomorrow. We want to thank everyone for the comments on the blog and especially praying for her it really helps us out and means alot, also those of you who have contributed to us thank you so much. love the Kings

Thursday, December 9, 2010

hey we got to bring kensley home late tuesday night. we were all so glad and grateful to be back, she lit right up when we walked into the house. we met with our home health nurse wednesday and went over what we would be doing throughout this process. they will be in on mondays and thursdays to draw her blood that will be used to keep an eye on her counts and such. we are taking her into the hospital on friday's here in cedar to give her one part of her chemo treatments. we cant have visitors for a few days while her counts are dropping from her first session last friday. we have to be pretty strict on that one even though we dont want to be. but we all want what is best for her right now. that means sick people stay clear :) we are able to be here most of the month so we are thankful for that because the holidays are so important for us. we have to take her up around the 20th for the surgery to move her ovaries and then be back for christmas. after the holidays we are going to be really busy with her for six to seven weeks. they have set out some jars at both of our work places and a savings account for kensley at zions bank, and on behalf of our family we thank everyone for your contributions to us. it means alot and we are so thankful to be surrounded by such great people this season. love the kings

Monday, December 6, 2010

Dec 6 th

Today we had a meeting with the radiologist and went over the procedures that we will do we we come back on the 20th of dec. there was positive and negative things about it. they are quite sure they can shrink the tumor with the radiation in a quick way but it has the side affects of it also. they are worried about her ovaries where they are so close to her bladder that the radiation will have an affect on them and make it so she cant conceive. there is a procedure where they can take them and put them up in her abdomen so they wont be harmed. they say its not to hard on her to do it, so we are looking into that right now. our next concern before we can bring her home is to be able to cath her a few times a day until the tumor shrinks enough she can go on her own normally.we were hoping that when we took her fully cathedar out sunday that she would be able to urinate on her own, and she was a little bit but not enough to satisfy anyone. so after her bladder scan we had to try to get it back in to drain the system. after four of us held her down to do it we realized this wasn't going to happen three or four times a day at home. so we have the fully back in now and we are prob bringing it home with us for a while, which will be no fun. we spent some of the day learning how to change bandages and clean her central line. ( i don't know if i mentioned this before but they surgically implanted a line into one of her main arteries that will be used to draw all of the blood samples and to do the chemo through during the next 43 weeks) anyways that is what we are learning how to take care of. we are busy and overwhelmed with information but we have faith we will all get through this and learn alot throughout the process. thanks again for everyone's thoughts,prayers, and support. we couldn't do it without you guys, thanks and until our next post love adam,jenni,kensley and korbin

Sunday, December 5, 2010

Kensley's Journey

On sunday November 28 we life flighted Kensley to Primary Childrens Hospital with some stomach problems, her symptoms began about six weeks prior when she was acting like she was constipated. We took her in after a day or two of this went on. we treated her like the normal but as time went on it seemed to get worse. we took her to a specialist in st george and they checked her out and we were treating her for an irritaded bowel liner. almost a week had gone by and she stopped bearing down and seemed like she was getting better. just before thanksgiving she would be up in the mornings playing like normal then after her nap she would just lay around and want to be held. saturday night we took her to the er and they ran some tests and sent us home with medicine to treat a urinary tract infection. we went back in sunday for her follow up and they drew some more blood and they decided to get her up here as soon as they could. her and jenni got up here on life flight and they started some ct scans and different things. they discovered a tumor in her bladder that was around 9 cm wide. her bladder was pretty much taken over by the tumor. they got her in the operating room that morning and got a biopsy on the mass. they had a few more scans to do on her to make sure nothing had spread anywhere else. later on we got news that nothing had spread throughout and it was pretty well contained in her bladder. the biopsy had come back as what is called rhabdomyosarcoma. these are tumors that are found mostly in young children and teenagers. there are about 350 new cases a year across the country of this disease. they stage these cancers in 1 to 4 she is a three because of the location of it. the bladder is an important organ so this is why she is in that stage and why we have to go at it a little different way. most cases they can go in and cut these tumors out and treat them with the chemo therapy. kensley will do chemo and radiation to shrink the tumor down and perhaps just make it look like scar tissue. if it leaves any in there they will go back in when its small and cut it out. she started her chemo friday afternoon and was really sick yesterday.today she is doing alot better she has been playin with grandpa king and coloring along with playing with some toys. they took her cathedar out this morning but until the tumor can shrink out of the way so she can go by herself we have to cath her a few times a day and she is fighting this to the max. that is where we are with things after that week in a nutshell. we will try to keep posted as much as possible.we want everyone to know that we are thankful for your thoughts and prayers. please continue to pray for her we know that she is in good hands between the lord and primary childrens. Kensley has a long road in front of her and we are all here to help her through this. Thanks
Just a few pictures of me and my family. Thank you to eveyone that has come to see me or who has sent little gifts up here for me. Seeing my family and playing with all my cool new stuff makes me feel a little better :)
grandpa and Angie came to visit


Grandma Camille given loves



Grandma Stacy and Kens





Her first wagon ride to get out of the room so they could change her bedding. She wasnt happy about moving but after we got her in she loved it.




mom and Kens. She wasnt feelin the love.






the first time standing in almost a week. she loves her mommy to hold her








big kisses for daddy








drinking her now favorite juice. apple :)









having a cheeseburger with grandpa dave




laying with aunt megan



korbin came to visit his big sister



blowing bubbles with dad



just drawing on my new toy



just having some spaghettios






just after they took her iv's out of her hands


just snugglin

this was the cutest dog ever. His name is Elliot, they bring dogs around every couple days and he got right up and layed right by her. If you know Kens she loves dogs so it was good for her to play with him for a min.